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Anonymous

I am sorry that you have this terrible disease. I was first diagnosed in 1998. I had severe chest pain with it. I took prednisone for nine months and I thought it was gone. But after eight years, it came back with a vengence. I am now on oxygen, when I go out to stores, or just walking. I had three more episodes of having to take prednisone to get it back into submission. I am always at risk for more damage to my body, but there is not a lot you can do with it. My body's organs have to be monitored for sarcoidosis. We are looking for it to travel to other places in my body. So everytime I get sick again I have to deal with mri's, and other tests to see if my body parts are still working. I have two leaking heart valves that I didn't have two years ago. So be sure you get with some good doctors to help you survive what you have. I live from day to day. I have trouble everyday, but I try to keep the depression away from my door. Its not easy, but you can do it. There is a lot of us who have sarcoidosis out here. We live everyday. Good luck to you.

March 30, 2009 - 10:58am

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