I found out that I had this disease at the age of 12 and have let it really get to me until the last year or so. I started biking again, weight lifting and well... getting my mind in the right place.
I don't like to do that much research because I find that there isn't very much helpful information out. Most of it just informs you of what you have to look forward to, which usually doesn't end up being so positive. The best advice i can give to any one with CMT would be to keep your head high and understand that each case is different. Just because some one with the same strain ended up in a wheelchair doesn't mean that you are destine to be there too.
For god sake, please do not believe every word that comes out of a doctors mouth because they will only tell you the worst case scenario and it's always a lot worse of a scenario than you're actually in.
Don't ever hope for improvement, strive for it! (trust me, it will come. It may be slow but it can be done) keep active and understand that it will get better. Reality is what you make it, your thoughts will create that reality for you. believe that you will be in a wheelchair and you can bet your a** you will be.
"Don't Believe everything you think"
wish you all the best, don't worry or fear. It will be what you make it.
Jay, 28
Comment Reply
I found out that I had this disease at the age of 12 and have let it really get to me until the last year or so. I started biking again, weight lifting and well... getting my mind in the right place.
I don't like to do that much research because I find that there isn't very much helpful information out. Most of it just informs you of what you have to look forward to, which usually doesn't end up being so positive. The best advice i can give to any one with CMT would be to keep your head high and understand that each case is different. Just because some one with the same strain ended up in a wheelchair doesn't mean that you are destine to be there too.
For god sake, please do not believe every word that comes out of a doctors mouth because they will only tell you the worst case scenario and it's always a lot worse of a scenario than you're actually in.
Don't ever hope for improvement, strive for it! (trust me, it will come. It may be slow but it can be done) keep active and understand that it will get better. Reality is what you make it, your thoughts will create that reality for you. believe that you will be in a wheelchair and you can bet your a** you will be.
"Don't Believe everything you think"
August 3, 2011 - 7:45amwish you all the best, don't worry or fear. It will be what you make it.
Jay, 28
This Comment
Reply