I am 40 and have had symptoms of CMT my entire life. Most noticeable was toe cramping and severe arch pain. I have an extremely high arch and hammer toes.
I was only diagnosed a few months ago after complaining to my doctor that I had burning pain in my left leg and wondering if it was due to surgery I had on my knee (lots of knee pain and nothing showing on an MRI, he removed inflamed tissue). When I went to the neurologist, I mentioned that my left hand had been numb for months and I was feeling numbness in both feet in addition to increased toe cramping.
I was put on Gabapentin by my neurologist.
I now take:
1200 - 1800mg of Alpha Lipoic acid (antioxidant)
Infla Thera (anti inflammatory)
Phyto ADR (promotes healthy adrenals)
NAC (glutamate scavenger, replaced Gabapentin and no dizzy side effects)
Taurine (similar to NAC)
DHA (fish oil)
Even though I have only been taking these for about a month, I am having luck with this. The toe cramping and arch pain is much less frequent. I don't have as much of a problem picking up pots of hot water to drain them anymore either.
I hope one day we can all live symptom free (my 2 Boys have been diagnosed as well).
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Hi all,
I am 40 and have had symptoms of CMT my entire life. Most noticeable was toe cramping and severe arch pain. I have an extremely high arch and hammer toes.
I was only diagnosed a few months ago after complaining to my doctor that I had burning pain in my left leg and wondering if it was due to surgery I had on my knee (lots of knee pain and nothing showing on an MRI, he removed inflamed tissue). When I went to the neurologist, I mentioned that my left hand had been numb for months and I was feeling numbness in both feet in addition to increased toe cramping.
I was put on Gabapentin by my neurologist.
I now take:
1200 - 1800mg of Alpha Lipoic acid (antioxidant)
Infla Thera (anti inflammatory)
Phyto ADR (promotes healthy adrenals)
NAC (glutamate scavenger, replaced Gabapentin and no dizzy side effects)
Taurine (similar to NAC)
DHA (fish oil)
Even though I have only been taking these for about a month, I am having luck with this. The toe cramping and arch pain is much less frequent. I don't have as much of a problem picking up pots of hot water to drain them anymore either.
I hope one day we can all live symptom free (my 2 Boys have been diagnosed as well).
Kathy
May 15, 2011 - 7:00amThis Comment
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