I have CMT too. My problem started when I was about 4 or 5. My feet began turning in the way and I developed a high arch. Throughout my childhood I had a number of operations to correct my feet including two steindler releases, an ostiotomy, and a triple arthrodesis in each of my feet, aswell as fusion surgery on my big toes. My last operation was when I was about 16 and i'm now 26. The triple arthrodesis really helped to straighten my feet, they have never turned again. I walk with more stability then i used to, but my feet have been fused so much I only have a 20% movement left in them. This just means i have to walk slower and be more careful. My muscles in my calves especially are also quite wasted away. I think this disease works differently for most people, but this has been my experience and i have managed to live through it. I hope your husbands ok.
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Hello,
I have CMT too. My problem started when I was about 4 or 5. My feet began turning in the way and I developed a high arch. Throughout my childhood I had a number of operations to correct my feet including two steindler releases, an ostiotomy, and a triple arthrodesis in each of my feet, aswell as fusion surgery on my big toes. My last operation was when I was about 16 and i'm now 26. The triple arthrodesis really helped to straighten my feet, they have never turned again. I walk with more stability then i used to, but my feet have been fused so much I only have a 20% movement left in them. This just means i have to walk slower and be more careful. My muscles in my calves especially are also quite wasted away. I think this disease works differently for most people, but this has been my experience and i have managed to live through it. I hope your husbands ok.
Craig
June 20, 2010 - 3:00amThis Comment
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