Wow-it's amazing the varying degrees to which CMT can manifest itself. Even within the same gene pool (when I consider my own family). My husband and I are at somewhat of a loss as it relates to our son, who was diagnosed at age 4. He is now 14 and 6 foot 5 inches. His passion has always been basketball and he has played at very competitive levels since he was 9/10 (AAU national championship tourney - 10th place in 6th grade). Now he is playing at the 8th grade level and being tall has finally caught up to him. His disease has slowed his response time down - big time. He can't jump like others and in general, plays with pain...but never complains...but he is playing less and has recently lost his starting position. He's been pursued by some top private schools in the area - because he also plays football. While I clearly recognize that he is so fortunate to be able to do what he can, when I think of his dreams of a division I scholarship, it breaks my heart to think of what we should do from here. Do we continue to offer ways for him to work hard to overcome and become better - ? or simply settle. It's hard. Perhaps he should focus on one sport over the other - maybe his chances to not be limited in one are better than the other. It's complicated. don't get me wrong, there are WAY bigger problems in life - but I also don't want to miss a chance for my child to learn to deal with/overcome adversity... life is, after all, full of it. Any ideas?
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Wow-it's amazing the varying degrees to which CMT can manifest itself. Even within the same gene pool (when I consider my own family). My husband and I are at somewhat of a loss as it relates to our son, who was diagnosed at age 4. He is now 14 and 6 foot 5 inches. His passion has always been basketball and he has played at very competitive levels since he was 9/10 (AAU national championship tourney - 10th place in 6th grade). Now he is playing at the 8th grade level and being tall has finally caught up to him. His disease has slowed his response time down - big time. He can't jump like others and in general, plays with pain...but never complains...but he is playing less and has recently lost his starting position. He's been pursued by some top private schools in the area - because he also plays football. While I clearly recognize that he is so fortunate to be able to do what he can, when I think of his dreams of a division I scholarship, it breaks my heart to think of what we should do from here. Do we continue to offer ways for him to work hard to overcome and become better - ? or simply settle. It's hard. Perhaps he should focus on one sport over the other - maybe his chances to not be limited in one are better than the other. It's complicated. don't get me wrong, there are WAY bigger problems in life - but I also don't want to miss a chance for my child to learn to deal with/overcome adversity... life is, after all, full of it. Any ideas?
April 4, 2009 - 9:14pmThis Comment
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