I also have CMT. I was diagnosed with it 21 years ago during my first pregnancy. For the past 10 years I have been wearing AFOs to help me walk. Recently my legs have become so weak that it makes going up and down stairs extremely difficult. I am a teacher in a school with 3 floors and this is becoming a problem. I feel as though I am not doing my job properly. I have wonderful friends at work that take my class to and from their special classes so I do not have to contend with the stairs; however, I feel as thought I am taking advantage of them and they will grow to resent it. I am not ready to retire but I feel that this is interfering with my job duties.
I too have read about CoQ 10 and thought I would give it a try, it can't hurt.
My husband has been my rock. No one knows how much I truly depend on him. I just hope this disease skips over my children.
Sorry I did not give you any new advice or words of wisdom but it felt good to vent.
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I also have CMT. I was diagnosed with it 21 years ago during my first pregnancy. For the past 10 years I have been wearing AFOs to help me walk. Recently my legs have become so weak that it makes going up and down stairs extremely difficult. I am a teacher in a school with 3 floors and this is becoming a problem. I feel as though I am not doing my job properly. I have wonderful friends at work that take my class to and from their special classes so I do not have to contend with the stairs; however, I feel as thought I am taking advantage of them and they will grow to resent it. I am not ready to retire but I feel that this is interfering with my job duties.
I too have read about CoQ 10 and thought I would give it a try, it can't hurt.
My husband has been my rock. No one knows how much I truly depend on him. I just hope this disease skips over my children.
Sorry I did not give you any new advice or words of wisdom but it felt good to vent.
Best of luck to everyone.
February 28, 2009 - 12:23pmCarol
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