I also have CMT. I was diagnosed at age 10 (I am now 39). My father, grandfather and several other members of my family also have had CMT. I also wanted to recommend joining CMTA. There a numerous resources there, as well as a forum to ask questions and join in discussions with others with CMT. It often helps to have contact with others who are going through similar things. You don't feel quite so alone. MDA has also been very helpful to me throughout the years (I am proud to be one of Jerry's kids). They have been able to answer questions, recommend doctors, prescribe orthotics, etc. -- they also offer clinics throughout the world. I want to commend and encourage those of you who are giving support to their spouses/family members/friends. My wife has been my strength and helpmate. Enough can never be said about the importance of that support. Some days are difficult to make it through without it. In the past couple of months I have heard about the advancements in possible treatments: absorbic acid (vitamin C), CoQ10, stem cell, and others. It has given me a renewed sense of hope.
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I also have CMT. I was diagnosed at age 10 (I am now 39). My father, grandfather and several other members of my family also have had CMT. I also wanted to recommend joining CMTA. There a numerous resources there, as well as a forum to ask questions and join in discussions with others with CMT. It often helps to have contact with others who are going through similar things. You don't feel quite so alone. MDA has also been very helpful to me throughout the years (I am proud to be one of Jerry's kids). They have been able to answer questions, recommend doctors, prescribe orthotics, etc. -- they also offer clinics throughout the world. I want to commend and encourage those of you who are giving support to their spouses/family members/friends. My wife has been my strength and helpmate. Enough can never be said about the importance of that support. Some days are difficult to make it through without it. In the past couple of months I have heard about the advancements in possible treatments: absorbic acid (vitamin C), CoQ10, stem cell, and others. It has given me a renewed sense of hope.
God Bless,
February 21, 2009 - 10:25pmMichael
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