I have been doing research on CMT as well as my daughter is suffering from this progressive disease. She is just under 5 years of age, and was diagnosed of CMT in the early few months of her life. She cannot walk properly and frequently falls down if she walk without orthosis. She also have problems with her hands as she cannot grip things properly and have probem during eating and when working with fine motors.
As per my research, I am optimistic that with this pace of modern medicines and research, the CMT community would definitely hear a good news in a few years.
As an example, a gadget that has been invented which would by-pass the peripheral nervous system and would directly connect brain with foot to control movements. Here is the detail:
http://news.bbc.co.uk/2/hi/health/7669159.stm
Research is being done on how to regenerate neurons. Below is the detail on this:
http://www.ucalgary.ca/news/march2008/syed-nerve-cells
The gene-therapy technology is also advancing with some pace. It has already shown some positive results in curing other diseases. Below is the detail on it:
http://news.bbc.co.uk/2/hi/health/7369740.stm
Some latest orthosis for CMT patients:
http://www.biomech.com/full_article/?ArticleID=799&month=1&year=2005
http://news.bbc.co.uk/2/hi/uk_news/magazine/6153748.stm
Another bright prospect is stem cell technique. Detail on it is found below:
http://www.mayoclinic.com/health/stem-cells/CA00081
Some miracles that can be done through Stem Cell Research:
http://news.bbc.co.uk/2/hi/health/7435137.stm
http://news.bbc.co.uk/2/hi/science/nature/4155016.stm
http://news.bbc.co.uk/2/hi/health/7795586.stm
These are the few ones that I have at the moment. There is much research done in this field.
I hope this information would bring some relief to Michelle.
Comment Reply
Hi,
I have been doing research on CMT as well as my daughter is suffering from this progressive disease. She is just under 5 years of age, and was diagnosed of CMT in the early few months of her life. She cannot walk properly and frequently falls down if she walk without orthosis. She also have problems with her hands as she cannot grip things properly and have probem during eating and when working with fine motors.
As per my research, I am optimistic that with this pace of modern medicines and research, the CMT community would definitely hear a good news in a few years.
As an example, a gadget that has been invented which would by-pass the peripheral nervous system and would directly connect brain with foot to control movements. Here is the detail:
http://news.bbc.co.uk/2/hi/health/7669159.stm
Research is being done on how to regenerate neurons. Below is the detail on this:
http://www.ucalgary.ca/news/march2008/syed-nerve-cells
The gene-therapy technology is also advancing with some pace. It has already shown some positive results in curing other diseases. Below is the detail on it:
http://news.bbc.co.uk/2/hi/health/7369740.stm
Some latest orthosis for CMT patients:
http://www.biomech.com/full_article/?ArticleID=799&month=1&year=2005
http://news.bbc.co.uk/2/hi/uk_news/magazine/6153748.stm
Another bright prospect is stem cell technique. Detail on it is found below:
http://www.mayoclinic.com/health/stem-cells/CA00081
Some miracles that can be done through Stem Cell Research:
http://news.bbc.co.uk/2/hi/health/7435137.stm
http://news.bbc.co.uk/2/hi/science/nature/4155016.stm
http://news.bbc.co.uk/2/hi/health/7795586.stm
These are the few ones that I have at the moment. There is much research done in this field.
I hope this information would bring some relief to Michelle.
Best Regards,
January 20, 2009 - 9:48amKarar Haider
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