Hi
my husband has cmtx and we have recently been on a search for new info. we have found an abundant amount of information recently on cmt group on yahoo. the woman who runs the site is very imformative and the cmta is a good resource also. My husband was diagnosed in his early teens and his whole family suffers from it. Each one of them presents slightly different in the atrophies. oxford university also did a study on his family. My husband is 49 now and the condition has taken his hands but his very adaptable. its very frustrating and you have to just keep reminding him that your there. Good luck to you and hope for the best.
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Hi
May 3, 2012 - 11:12ammy husband has cmtx and we have recently been on a search for new info. we have found an abundant amount of information recently on cmt group on yahoo. the woman who runs the site is very imformative and the cmta is a good resource also. My husband was diagnosed in his early teens and his whole family suffers from it. Each one of them presents slightly different in the atrophies. oxford university also did a study on his family. My husband is 49 now and the condition has taken his hands but his very adaptable. its very frustrating and you have to just keep reminding him that your there. Good luck to you and hope for the best.
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